Jumla 12/2014

Family with infections and hearing loss in mother (25) and daughter (5), and profound loss in her son (8).


This delightful family shocked us with their hearing problems. Mum Asa (which means hope) was 25 years old. She has moderately severe nerve deafness in both ears and for that reason had not been able to go to school. Her young daughter Sonam aged 5 years not only had a similar hearing loss from birth but also had a history of frequent episodes of ear discharge on both sides, starting in infancy. Her older brother Sunil, aged 8 years was in a worse state, he appeared to have no hearing at all in either ear from birth and similarly also suffered regular attacks of otitis media and discharge. His only speech was the word ‘mummy’. For him we could only recommend a deaf school, but we could see that the family would not have the resources for the travel and boarding that would be needed. They came with Grandad, who had good hearing for his age, and dad was off in India working, we were told that he could hear. We were able to fit Asa and Sonam with hearing aids, at first Asa was reluctant to be fitted, as even in remote Nepali mountain villages, girls do worry about their appearance! But seeing her daughter’s response she asked to have an aid herself. The children were a delight to watch playing. We gave them some knitted teddy-bear toys and they immediately strapped them on their backs as the locals do when carrying their babies to the fields. There was a lot of laughter and giggling, we just wished we could do more.

Their records with audio results: